Hard day!!!

I was hit with a blow. My insurance doesn’t want to pay for the ABA center. In this place call the Untied States with it bullshit for profit insurance companies. Thank god for the woman who works at this place. She told me another family with my same insurance company didn’t want to fight it. WTF, I told her I pay a lot of damn money for my insurance fight those bastards. There is a mandate in Massachusetts to pay for autism therapies. They are saying they will pay for home, not center.

She played the single mother card. Told them I am at work paying for their insurance how the hell can I be home for her therapy. I thought to go girl!!, God is putting these Angels in my life to bless my baby with the things she needs. She got them to concede and they allowed the payment for the initial evaluation.

The insurance company called me and try to talk me out of the center by saying it will be 30 bucks a day. The lady at the center said don’t listen to that bullshit. They don’t have an in-network option so it will not be 30 bucks a day. They are riding the line of legality. The autism center said they have no problem sending a letter from legal.

Also with a mother love I called and harrassed for my secondary insurance for Ava disability to be approved by the state. I should have done it a lot earlier. God on my side it all came through they same day of the bad news of my insurance company being a bunch of assholes.

So even if it was 30 bucks a day. It should be covered by my secondary insurance. The secondary insurance will also pay for transportation for Ava to the center every day. They gave me a premium for this insurance. Which was not outrageous. I would have squeezed it out of my budget even if I had to charge it.

I was approved for premium assistance and it was covered. I told the woman at premium assistance she was my angel. They had a 90-day backlog. This woman did mine in one day. Yes, one damn day. God was so on my side. So no money out of my pocket and my baby get what she needs. We still have a few hurdles before she actually starts. Every hurdle can stop her going to Autism center in its tracks. So far we are still on the road to success. Please pray for my baby. I have been asking for prayers from everyone. I don’t care who you worship or pray to. Send one up for my baby.

Graduating EI

The end of the Early intervention. All her therapist came to my house when I was at work of course. I bought a cake for everyone. Which said Ava graduation. No one took a picture for me. When I talked to my mom they already ate it.

When I called them I thought they would have my baby talking in no time. Little did I know when I called them I would be going down the rabbit hole of diagnosis, therapist, Autism, ABA, advocacy, and stress. My life has taken a turned I can’t say I was prepared for. I gained 50 pounds eating out of stress and worry for my baby future.

Even though she has made massive improvements. She still has not spoken a word. Which is the reason I called them in the first place?  Advocacy for my child is my number one priority. EI told me they have parents that tell them not to come back when they suggest they get a diagnosis of autism. I pray for those babies that someone will help them.

I took her diagnosis very personal. What did I do wrong? What could I have done better? What did I not pay attention to? Ill prepared for any of this. I had many nights crying in my pillow. Until I met other autism parents, I realized I am not a freak. A lot of these mothers are crying and eating the pain away.  With the crying and eating they still get up and take care of their kids and advocate for their success. The tears of the mother are the prayers to god to spare their baby from any struggles or pain.  Life is not paved in gold for anyone. We all have problems and things we have to deal with. I wouldn’t advise anyone to gain 50 pounds. If those 50 pounds keeps from a complete breakdown then eat dammit. I am sorry food got me through. I am working on getting it off now. But I am glad I ate than drank.  Thank god for that!!!

Ava Special Needs

Well I went public. My blog is not inline with my YouTube channel. To be honest folks, I write a lot of these in advance. Then schedule them out to keep them going. It is all my life just not in real time. Sometimes!!! Unless I had a hard day and just needed to write.

This works for me to keep my blog alive weekly. Instead of letting it go for months with the lack of time in my life.

So Ava is autistic. I few of you guys figured it out. I am not embarrassed or ashamed. That is not the reason I didn’t answer anyone’s questions. I was going through a lot. Had to get a lot in place for my child. Had to work on her, and all her needs.

I had no idea what the word meant. I have cousin with autism. I really thought it was just hard to socialize and make friends. OMG it means a whole lot more than that. My closest friends and family has really been my comfort. When I was sitting in the doctors face. She approved my child for 25 hours a week of services. She said if there is no progress we will be having a different conversation the next time.

Well it has been a year. A lot of progress has been made in some areas. Not in all, but which can bother me at times. The therapist love to say we need to meet them where they are at. I met a mom and I have to steel what she said. I need to meet her where she needs to go not where she is at.

Early intervention think I am super mom. I feel I fall short from that title in many ways. I work a full time job. I have an hours worth of commute each way. I do go out my way to email them. Set goals I want to see happen. Sit down and talk to them when I can.

Tonight I wrote a proposal try and get parents evening and weekend training classes. I have not taken early childhood, speech or ABA classes. I need help in those areas so I can help my child.

I have already picked out her preschool. Please pray we get in. I have had a one on one with the assistant principal. I have things I want to work on implementing and goals I want her to reach. My baby is my pries possession. She will be doing testing for preschool hopefully this month. To start immediately when she turns 3 and the services end. Which in Massachusetts is 3.

Ok I know some will go into vaccines. I met a woman that delayed the vaccines and her daughter still got it. I did beat myself up for not doing a delayed schedule. Or some kind of way this is my fault. I had to let that go. None of that talk will help my daughter.

She will have challenges and I will be there to help her through everyone . …