Autism Center Update

I ended up in a meeting with a lot of people to discuss my complaints. I tried to defuse the situation, in the beginning, to say I love this place, I just have some concerns. Well, there were great outcomes from this meeting.

They will send home better updates. They are sending me a copy of the PEC they are using home. I am going to go in for more parent training. They implemented it right away.

Then there were a few things that happened in that meeting that pissed me off. Granted I had to play diplomate. They are the only game in town with this kind of program. I am in a rock in a hard place.

I was told twice if they weren’t doing what I needed they would help me find someplace else. Also, it was brought up that Ava could be intellectually disabled. Which pissed me off. In this journey of autism.  I have asked that question to several therapists. I always got a no. Due to her being there 10 months and that was never stated before. I feel it was bullshit to shift accountability.

Several other things made me upset. I left that meeting feeling beaten and mistreated. It wasn’t anyone working directly with my child. Granted they backed her up which felt happened due to her being the big boss.

I did not let her totally roll over me. What I stated is anyone in this room stating my child is intellectually disabled. She said no we can’t make that diagnosis. Then it shouldn’t have been mentioned in that setting in my view.

I don’t know this woman personally. I have been in this position, and I felt the same way. Some white people do not want to be questioned by minorities. I really thought she was trying to put me in my place. In a way, I took some of the bullshit. I wasn’t going to let my pride destroy what my daughter needs.

I also called them on the carpet for the blanket statements about my child with no validated reason. I said she also equally learn slow. Which they agreed. I still love her center. Even though I was not feeling upper management.

The changes were made I am happy with that outcome. I talked to several parents, and they implemented the changes across the board. So my mouth has made it happen. It didn’t go on deaf ears.

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Graduating EI

The end of the Early intervention. All her therapist came to my house when I was at work of course. I bought a cake for everyone. Which said Ava graduation. No one took a picture for me. When I talked to my mom they already ate it.

When I called them I thought they would have my baby talking in no time. Little did I know when I called them I would be going down the rabbit hole of diagnosis, therapist, Autism, ABA, advocacy, and stress. My life has taken a turned I can’t say I was prepared for. I gained 50 pounds eating out of stress and worry for my baby future.

Even though she has made massive improvements. She still has not spoken a word. Which is the reason I called them in the first place?  Advocacy for my child is my number one priority. EI told me they have parents that tell them not to come back when they suggest they get a diagnosis of autism. I pray for those babies that someone will help them.

I took her diagnosis very personal. What did I do wrong? What could I have done better? What did I not pay attention to? Ill prepared for any of this. I had many nights crying in my pillow. Until I met other autism parents, I realized I am not a freak. A lot of these mothers are crying and eating the pain away.  With the crying and eating they still get up and take care of their kids and advocate for their success. The tears of the mother are the prayers to god to spare their baby from any struggles or pain.  Life is not paved in gold for anyone. We all have problems and things we have to deal with. I wouldn’t advise anyone to gain 50 pounds. If those 50 pounds keeps from a complete breakdown then eat dammit. I am sorry food got me through. I am working on getting it off now. But I am glad I ate than drank.  Thank god for that!!!