Ava was put on the transportation by my mom. I am usually at work already taking a nap in my office parking lot. I know it sounds crazy, but my job has a parking space issues. I have anxiety issues that flare up when I am pressured in looking for a place to park. Especially when I am under pressure to get somewhere on time. Such as a job or a job interview. To not have an anxiety attack I tend to get places early.
I don’t actually enter my job until the time work starts. I don’t have a key to get in and I don’t have to work overtime at this job. So my mom usually calls if the transportation is late. She wants me to call and see where they are at. Or she calls when Ava is off to school. Then the Autism center is instructed to send my mother and I a text saying Ava got there. Well, my mom called me back after she said Ava was off. I said whats up, annoyed because she was interrupting my nap.
She state Ava threw up on the bus and they are bringing her back and hung up the phone. I know two other children that were throwing up last week at the Autism Center. I was hoping this illness skipped Ava no luck there.
I called my mom later and they said throw up was everywhere. They didn’t take her out the car seat. When my mother came outside they sat her on the sidewalk car seat and all. My mother said the throw up was everywhere. The driver was acting like he was going to be next tossing his cookies.
My mother hasn’t had to deal with Ava for a whole day in a long while. So Ava was driving her crazy because she was getting into everything. I called the transportation and told them she wouldn’t be back to school until Monday. Since she got sick on Thursday, give her a few days to make sure she is alright.
So after that morning drama. I have to work late on Thursday. On my way home I was rear-ended by an older man on the highway. So I ended up getting home two hours later than usual. It was a horrible day and my car is some bullshit I didn’t need. Thank god I didn’t get hurt. #REALLIFE
I wanted to start with I schedule these post out. So I can keep a constant flow of content. I write them when I have the time or during my emotional dramas. This particular Sunday I woke up with nothing to do. I feel like a horrible parent if I kept my child in the house too often. I called a friend who loves us to come over. I never go over there. I knew her since the third grade. Ava loves it at her house. I have no real reason why I don’t go over there more often. She has four kids. Her oldest is adopted her only girl which she took her in after her mother died. A friend of hers from High School. We went to a very big High School so I didn’t know the girl until years after we graduated. Her daughter loves playing with Ava and watching her. Which gives me a big break. I can actually converse with my friend and feel like I can have some adult time.
Well her youngest is two and we had a cute conversation. He likes Ava to and kept bringing her toys. He would say this is for Ava that is for Ava. I told my friend I wish Ava could talk. She is over a year older than her son. She said don’t compare them. He doesn’t have autism. I know she is right but my soul was sinking hearing this little boy talk to me and ask me questions.
We stayed for several hours. I got in the car ready to go. I cried all the way home. I want to hear my baby voice. I want to hear mommy come from her lips. No one can tell me she will talk. I mean no one will say those words. My now close friend who daughter goes to the autism center with Ava. We put them in together. They told her, her daughter will talk. She is saying her ABC’s and singing songs. She has also been in preschool for a year and is older than Ava. I know these kids are all different. I know I can’t predict the future and no one else can. Please God Please give my baby words. Help her to be successful and be able to handle life on her own. My worries my fears are great. My love is deep, my heart is broken with this word I never dreamed would be a part of my life. AUTISM
This insurance for Ava school (ABA Program) I am calling it school. All this has been some bullshit. So I am sitting in parent orientation and they mention my cost would be 30.00 a day. My faced dropped. I told her I talked to that lady that name started with J. Yeah I had no idea what her name was. She said it would be 20.00 a day. I also have that secondary insurance which the autism center is in the final stages of being in network with. Then my charge would be zero.
Well, I called your insurance company and they said 30.00. Well, can you check again I stressed? Now I will go into debt for my baby. If it will get her to talk I will do whatever it is I have to. But that lady told me 20.00 and messing my money is like messing with my emotions. I will call now and email you what I find out. My mother and I picked up some food after the orientation. I checked my email and she said it was 30.00
I got home and found that lady email and went the hell off. You told me 20.00, where did this extra 10 come from. That is my problem with your insurance company the miss information. She wrote me back it will be 20.00 and cc the woman from the autism center.
Then the autism center emailed back I just called and your company is saying 30. It was a hot mess. It was clear I was getting upset and I told the lady at my insurance company what the hell is the price. Now she knows not to play with me. She called me and said it is 20, but for me, she will lower to 10.00. I was quiet as hell.
Can you email that as proof of this conversation. She said yes, which she did and I have no more words but GOD IS GOOD!!!!
I have been waiting for the approval for the autism center. I really thought they were going to deny it and I would have to appeal. Little did I know it was sitting on someone desk. I was sooo fucking pissed steam was coming out of my ears.
My baby doesn’t have services because of paperwork. I called and some chick on the other end told me it could take eight weeks. Wrong answer!!. Every time I called this company I got a bunch of complaints and excuses. They were fucking with the wrong BITCH they didn’t know it yet.
I reported them to the Massachusetts insurance commission. I told the eight-week chick and all of sudden she wants to contact another department to help me. I wanted to say wait a minute before I said that your ass was telling me it wasn’t’ your department. I got off the phone with her ready to fight.
I couldn’t let this bullshit stand. I comb the internet and found an email address to one of their VP’s.
I wrote a long email about their company was obstructionist. (Yes using the Trump words LOL) She wrote me back in minutes and said she was making calls. Within hours the operations coordinator was calling me. That contract that was supposed to take eight weeks took hours.
You would think the fight ended there. No, it just started. I reported them to the company that holds my health insurance policy. This opstructionist is a subcontractor. They told me the autism center could start treating my daughter there is an approval. They would not do that because this company is notorious for not paying the rates required. I told them my daughter is not going to start somewhere and you end up not working out these rates and she has to leave.
All my emails subject. Autistic 3-year-old denied Services. So the Autism Center was right they wanted to pay 13 bucks an hour. They pay more at Mcdonalds. I was pissed and was not playing any longer. I told them I would contact the Attorney General and I link the article where a company lost a case for restricting autism services. My last line was LET ME MAKE MYSELF CLEAR, I will contact channel five news and talk to anyone who will listen. They approved the rates that were necessary for my daughter to get into the autism center. Why did I have to do all that bullshit? I know there are other families that wouldn’t have fought as hard. I hope this company will think twice about doing this to another family. My daughter is in but doesn’t start for another month. Which pisses me off. They need more staff. If they approved it, in the beginning, she would already be there. God is teaching me patience.
When I told you guys I have a lottery problem. Well, it is a strange problem. I have piled up many tickets until Ava gets into this Autism Center. Then I will scratch them. Still waiting and got everyone in their mother praying for my daughter to get into this program. My aunt put us in the prayer box. Everyone I talk to I say, please pray for my baby.
So the ticket issues. I collect them for a special occasion. This is about four months of collecting. I usually get a few during payday. Or if I am in a strange area I have to pick one up. I know it looks like a lot. I know I have a bit of a problem. I swear when I win I will give back to someone in need.
I am sure I mentioned this before. I schedule out my blog post. This is to have consistent content. So I wouldn’t’ call my information current I put on the blog. So I am praying my daughter has already started this program while you are reading this post.
Presently we got approved for the transportation. I was sweating that. There were several ways this would have fallen apart. One being transportation. I will be at work when she would need to start the program. I will still be at work when it was time for her to go home.
I have to find a car seat. We will have to figure out who will stick int his car seat daily. I will have to tell them my mom is disabled and that will not be possible for her.
A worry, but the least of my worries. My insurance is trying not to pay. They are presently fighting my insurance company. I need God on my side. I really want her in this program. A friend has the good insurance. Blue Cross and they already gave her a start date.
I don’t know why in my career I have never lucked up when it comes to insurance. I have always had the bullshit policies. My baby needs this service. All this talk of insurance over the T.V.
I have to say I don’t trust a damn Republican or damn Democrat. When you can accept money from major corporations you are bought and paid for. I need to raise this child the best way I can. I will fight with every breath in my body.
We were approved for the Eval with much arguing with the insurance company. I brought my aunt with me for a second opinion. When you don’t have a man in your life, the family will do. Ava couldn’t wait to get into the center. She could see all the toys from the office we were in. She was looking over the child gate, with bated breath. As soon as the gate was opened, “see ya ma” is what she would have said if she could talk.
While they were doing the testing, We went in the room with the owner for the questions she had for me. I was glad my aunt came but she kind of got on my nerves a little. This is the first autism thing she has been to. So she was asking a question from her base of knowledge which was little. Asking questions, Why are there so many kids with autism? What changed over the years? Those questions are great. She needed to look them up online. I had questions for the present situations. I interrupted my aunt and touched her a few times to shut up.
She asked me before the visit if she could ask questions in her defense. I wanted to ask about the center and Ava being there. Not general autism questions. I asked if she could give my aunt a tour. She was happy to.
My aunt loved the place and felt this was a great option for Ava. I know I felt that way but having a second opinion that was making the right choice made me feel great.
I put in for the transportation. I wanted it to be ready and waiting for her first day. If they were any hiccups I wanted it taken care of before we needed it. Ann from my autism group IM me the language for the transportation. I am so thankful I met this woman. I am defiantly getting her a gift and the woman who started the organization once everything is done and Ava starts this program. Finger still crossed no more hiccups in the process of Ava first day.
I was hit with a blow. My insurance doesn’t want to pay for the ABA center. In this place call the Untied States with it bullshit for profit insurance companies. Thank god for the woman who works at this place. She told me another family with my same insurance company didn’t want to fight it. WTF, I told her I pay a lot of damn money for my insurance fight those bastards. There is a mandate in Massachusetts to pay for autism therapies. They are saying they will pay for home, not center.
She played the single mother card. Told them I am at work paying for their insurance how the hell can I be home for her therapy. I thought to go girl!!, God is putting these Angels in my life to bless my baby with the things she needs. She got them to concede and they allowed the payment for the initial evaluation.
The insurance company called me and try to talk me out of the center by saying it will be 30 bucks a day. The lady at the center said don’t listen to that bullshit. They don’t have an in-network option so it will not be 30 bucks a day. They are riding the line of legality. The autism center said they have no problem sending a letter from legal.
Also with a mother love I called and harrassed for my secondary insurance for Ava disability to be approved by the state. I should have done it a lot earlier. God on my side it all came through they same day of the bad news of my insurance company being a bunch of assholes.
So even if it was 30 bucks a day. It should be covered by my secondary insurance. The secondary insurance will also pay for transportation for Ava to the center every day. They gave me a premium for this insurance. Which was not outrageous. I would have squeezed it out of my budget even if I had to charge it.
I was approved for premium assistance and it was covered. I told the woman at premium assistance she was my angel. They had a 90-day backlog. This woman did mine in one day. Yes, one damn day. God was so on my side. So no money out of my pocket and my baby get what she needs. We still have a few hurdles before she actually starts. Every hurdle can stop her going to Autism center in its tracks. So far we are still on the road to success. Please pray for my baby. I have been asking for prayers from everyone. I don’t care who you worship or pray to. Send one up for my baby.