Still waiting on the Autism Center. The coordinator from the IEP sends me an email that she got into the preschool I wanted her in. I bitched sooo hard for that preschool. The coordinator emailed me as soon as she found out. Which would have been great news until I changed course.
Now waiting for the autism center. I haven’t let go of any of the original services. Always have that plan B. She can not sit in the house all day every day. She will get services one way or another.
I feel the autism center will be the best for her. I don’t know what God has planned for my child.
I have been in contact with my educational advocate. He had me write up my expectation for Ava IEP. I let him look at it first. He gave me a few corrections. Then I emailed it to everyone involved.
It was a very good suggestion. They will know what I want and can argue about it in the meeting. If they disagree.
I am hoping it all goes smoothly. I have to finish paying him for his services. Which so far seems very worth it. I had a lot going on at work today. I really need to make some calls and handle some business at lunch.
I have been so tired I took a nap in my car. I enjoy the naps until I have to get up and go back to work.
Ava has been going to bed late and waiting up early as hell. I wish I could finally feel like I am rested. I am always in a state of tired. Which is not helping me accomplish my other projects. God help me get enough sleep.
My child is finally sleeping through the night. The problem is she doesn’t go to sleep until 10-11pm. I have so many things I need to do. I keep putting her ass back in the bed. She laughs her ass off like we are playing the biggest game. I know she likes it when I am home. I really feel she stays up to spend time with me.
Which I love, but in the same breath, I have so many things going at once. I need a few night time hours to get things done.
My book it getting closer and closer to done. I will announce it on this blog if anyone in interested in reading it. It is a sci-fi novel on autism.
I am my own worst critic, I keep reading it over and over again and finding things wrong with it.
I have enlisted my friend to edit it. I am going to read it one more time and send it over for her to edit. Then I am going to get the rest together.
My Youtube channel is growing slowly. I am excited by the growth, but it has not turned into passive income.
I didn’t really start the Youtube channel to make money. I do enjoy making the video. I also noticed I wasn’t really putting in the time or effort to make it successful either.
With the limited time in my life, I can only devote so much. I still haven’t read the books the advocate told me to read for this IEP. I am going to get to it. I really don’t feel like reading the bullshit. I just want Boston Public Schools not to screw me and give my child everything she deserves.
Which I know is going to be hard which is why I hired the advocate in the first place.
Also, my mom lets Ava sleep for two hours a day. So I am sure when she start pre-school and has that 45 min nap she will be tired when she gets home. That will help me so much. At the moment she is a ball of energy when I walk in the door.
Ok, now that Ava will be three very soon, no more early intervention. I have to take her to all these test. I already didn’t like the tone of the woman when I initially had to sign the papers.
I got the impression there were trying to screw my kid out of services. She was nice nasty. She wasn’t mean or nice. Everyone wants to sell me on two pull out speech therapy. I want more than that. My kid does not talk. I want more then two sessions.
I already am looking into outside speech for her. Which I will have to drive and it will cost a co-pay and parking. Things could always be worse, I keep thinking to myself.
I have an advocate for my IEP. I need someone there who knows the laws. I don’t want to be screwed because I was ignorant to what they should give my baby. All this shit is hard. Hard to know if you are doing the right or wrong thing. I don’t want to make any mistakes. There is no real way to know if I am making the right decision!!!
Ava put her tablet in the toilet. I had to send it back to get a new one. Thank god for a two year no questions asked warranty.
It has been gone for a week. She asked the therapist for the tablet five different times. I have to say very obvious that she missing that thing. I know this is awful, but I miss it to. When I have other things to do, it keeps her entertained.
She is growing up in many ways. She is now in a toddler bed. Granted we are still in the same room. Long story on that one. She has a room. Since there is no man in my bed it isn’t really a big deal.
She will be starting preschool in May. Which I am hoping will push her along when she see other kids doing things she doesn’t do.
I am scared to death with the whole school thing. It is the next step. We are about to do the testing for her IEP. I am sure the teachers are going to love and hate me. I will be nice but I have expectations. Life shit in full effect.