When Ava is not feeling well, I feel horrible. Especially, since she cannot tell me what is wrong. So she has had diarrhea for two days. Which has created a crazy diaper rash? I swear I saw a little blood. All this scared me. I ran to Urgent Care. I was twenty minutes too late. So calling in sick to take my baby to the doctors. I can’t sleep on anything my baby needs.
I put it out to my Facebook group. Someone suggested I apply for FLMA. I think I am going to take advantage of that. I never want my being out for my daughter counting against me.
Clearly, she is uncomfortable. Whipping her is painful. I looked it up on WebMD. Why the hell did I do that? It said she might have an infection. My mother had a death trap car and doesn’t take Ava out by herself. So I have no other options to take her to the doctors. I am a solo mission in many ways. I wish I had a sister. I always wanted a good sibling.
I am still thinking of another baby. Granted the desire seems to fade every day. Especially with the challenges with Ava. God can do anything. I guess I need to pray more.
Ava will be three soon. I am running around to find services through my health insurance. Which might be totally covered by my state. Pray for me on that one. It would help greatly financially if Ava is approved.
I talked to our possible speech therapist. We are on the waiting list for the time that works with our schedule. They said we didn’t have to come for the evaluation if I sent in the IEP. There is an email system through my clinic that makes it easy to communicate with the doctors. Will the universe must have been on my side.
The speech therapist called me because she incorrectly sent me a note through the email system. I took that opportunity to ask how much success she has had with autistic children talking.
She said to come to that canceled appointment so we can talk. She can’t tell me what to do without meeting Ava. Then she asked me if her present speech therapist given me homework. I said excuse me what?? She said we will discuss it during the appointment. She has several techniques to work on with Ava daily. I was so excited. I am ready for things I can do to help my baby talk. I am ready for her to talk my ear off.
I wish I knew about these techniques before. I was beating myself up for a few minutes that I should have found an outside speech therapist before now. Then I came back to reality. When the hell would I have fit that in. She has a packed schedule of therapists. Mommy guilt is real!!!!
I have been in contact with my educational advocate. He had me write up my expectation for Ava IEP. I let him look at it first. He gave me a few corrections. Then I emailed it to everyone involved.
It was a very good suggestion. They will know what I want and can argue about it in the meeting. If they disagree.
I am hoping it all goes smoothly. I have to finish paying him for his services. Which so far seems very worth it. I had a lot going on at work today. I really need to make some calls and handle some business at lunch.
I have been so tired I took a nap in my car. I enjoy the naps until I have to get up and go back to work.
Ava has been going to bed late and waiting up early as hell. I wish I could finally feel like I am rested. I am always in a state of tired. Which is not helping me accomplish my other projects. God help me get enough sleep.
I got Ava to pee on the potty five times. I don’t think she totally gets it. Since we are working the nonverbal at the moment. She looks at me crazy when I dance around because she has peed.
I was putting her on every 15 minutes at first. Then I moved to every half an hour. I think 15 minutes is better. I missed her peeing twice. Her therapist told me to wait until she is 3. Then we got a knew therapist who told me not to under estimate her. Which I feel she is right.
The hard part is my consistency. We will be working on it again this up coming weekend. I have several days off. Pray for me!!! LOL