Ava will be three soon. I am running around to find services through my health insurance. Which might be totally covered by my state. Pray for me on that one. It would help greatly financially if Ava is approved.
I talked to our possible speech therapist. We are on the waiting list for the time that works with our schedule. They said we didn’t have to come for the evaluation if I sent in the IEP. There is an email system through my clinic that makes it easy to communicate with the doctors. Will the universe must have been on my side.
The speech therapist called me because she incorrectly sent me a note through the email system. I took that opportunity to ask how much success she has had with autistic children talking.
She said to come to that canceled appointment so we can talk. She can’t tell me what to do without meeting Ava. Then she asked me if her present speech therapist given me homework. I said excuse me what?? She said we will discuss it during the appointment. She has several techniques to work on with Ava daily. I was so excited. I am ready for things I can do to help my baby talk. I am ready for her to talk my ear off.
I wish I knew about these techniques before. I was beating myself up for a few minutes that I should have found an outside speech therapist before now. Then I came back to reality. When the hell would I have fit that in. She has a packed schedule of therapists. Mommy guilt is real!!!!
The saying God won’t give you more than you can handle. I do feel he has a sense of humor. Life is not how expected at all. I mean all of it. Life has surely been stranger than fiction.
My life has been blessed in a lot of ways. I know I say it a lot on this blog. I need to remind myself of a regular basis. I was talking to the Ava speech therapist. Her cousin son has just been diagnosed. She had to tell her mother he doesn’t have cancer. Yes that is how some people come at you. Like your kid is dying.
I have had a lot of heart to hearts with a lot of parents of autistic kids. We all have different stories and similar stories.
I thought I would be married. On my third child by now. I remember when my ex 20 years ago asked if I wanted to have a baby with him. In my opinion he just wanted to have sex with no condom.
Looking back, I should have did it. Hind-site is 20/20. If I would have went down that road. Many great women would have never entered my life.
There is no do overs for life. I enjoyed my life. I am still living every moment of it. Taking every challenge with head held high. Praying to god for the strength to get through. So far so good.
Well I went public. My blog is not inline with my YouTube channel. To be honest folks, I write a lot of these in advance. Then schedule them out to keep them going. It is all my life just not in real time. Sometimes!!! Unless I had a hard day and just needed to write.
This works for me to keep my blog alive weekly. Instead of letting it go for months with the lack of time in my life.
So Ava is autistic. I few of you guys figured it out. I am not embarrassed or ashamed. That is not the reason I didn’t answer anyone’s questions. I was going through a lot. Had to get a lot in place for my child. Had to work on her, and all her needs.
I had no idea what the word meant. I have cousin with autism. I really thought it was just hard to socialize and make friends. OMG it means a whole lot more than that. My closest friends and family has really been my comfort. When I was sitting in the doctors face. She approved my child for 25 hours a week of services. She said if there is no progress we will be having a different conversation the next time.
Well it has been a year. A lot of progress has been made in some areas. Not in all, but which can bother me at times. The therapist love to say we need to meet them where they are at. I met a mom and I have to steel what she said. I need to meet her where she needs to go not where she is at.
Early intervention think I am super mom. I feel I fall short from that title in many ways. I work a full time job. I have an hours worth of commute each way. I do go out my way to email them. Set goals I want to see happen. Sit down and talk to them when I can.
Tonight I wrote a proposal try and get parents evening and weekend training classes. I have not taken early childhood, speech or ABA classes. I need help in those areas so I can help my child.
I have already picked out her preschool. Please pray we get in. I have had a one on one with the assistant principal. I have things I want to work on implementing and goals I want her to reach. My baby is my pries possession. She will be doing testing for preschool hopefully this month. To start immediately when she turns 3 and the services end. Which in Massachusetts is 3.
Ok I know some will go into vaccines. I met a woman that delayed the vaccines and her daughter still got it. I did beat myself up for not doing a delayed schedule. Or some kind of way this is my fault. I had to let that go. None of that talk will help my daughter.
She will have challenges and I will be there to help her through everyone . …